This is What It’s Like to Live with Down Syndrome
A baby is born soft and squishy.
He has Down Syndrome.
On the third day, he has surgery and fights to live.
I sit by his side.
He grows; babbles; laughs; and learns to sit and and scoot on his bottom.
I cheer him along and lift him and haul him from here and to there.
This Down Syndrome doesn’t go away nor protect us from all harm.
For harm has come our way.
Our family was torn apart and left in pieces along the way.
After we unpacked the pain, the hurt and the dishes, we learned to rock again.
We learned to live with this thing called Down Syndrome and this thing called LIFE
and to stay by each other’s side.
The Rocking Pony on 30 Sep 2007 at 7:37 pm #
The initial shock is so earth shattering. The pain seems never ending. The confusion is incredible. And yet life goes on. The baby grows. And you realize that the diagnosis is nothing more than a label on one of the most incredible persons you’ve ever had the pleasure to meet. And you’re blessed to be called his parent.