This is what it’s like to live with Down Syndrome

A crimp in my neck runs from under my skull, over my shoulders, and splinters off down the spine. I went to bed fine; woke up as I fought off a camel hogging the bed all night. Turning to the right is downright painful and the rest of life’s every day motions are annoying and stiff.
All the "little things" add up when caring for my son, especially the lifting. This is injury is an old one, and it returns when I put too many straws on my back.
This morning Addison’s nanny had a crimp in her neck. Same side. We look like a pair of melted salt and pepper shakers. We both have to turn our whole body in order to use it. Reaching down to pick up Addison makes us wince and huff out funny noises like: oooffff….aaahhhgggg…bluuuufff. Our house smells like menthol rub. We laugh at how ridiculous we look.
As we finished breakfast, I told the nanny how I once read once that everyone who’s ever sat in a chair or lived in a house or used the changing room at the department store leaves their energy behind. So, we decided that the guy who used to live in this house must have had neck problems. Either that or it’s in the water.
Addison was sitting on the floor and signaled he wanted to be picked up.
Maybe we can get a camel to haul him around. I’ve seen camels trained to get down on their knees. Addy could climb up and fit perfectly between those two humps. In the meantime, I huffed and puffed and grunted as I reached down for my son to take a little walk in the sun.



Dennis on 14 Mar 2008 at 7:16 pm #
Take it from me…… It’s amazing what Hydracodone can do in a situation like that.. 10mg 2x. and a back support brace. And a good massuse. tis a sigh of old age… or in the water.