Down Syndrome
Costa Rica and Down Syndrome?
If you would have told me fifteen years ago I’d be designing a website with these two ingrediants as the main focus, hah! I guess I would chuckled a bit. But here I am. And oddly enough they go together. Moving to paradise doesn’t mean life stops. I haven’t been sitting around counting hummingbirds and doing Yoga all day. No, life keeps happening. I still need to make money, and the beds, and change the oil in the car, and raise my children. So, one of them happens to have that extra chromosome thing. Down Syndrome has given me this gift of finding out what people are made of and who I can count on. To me, that’s paradise. Some struggles sound quite the same as issues other parents deal with, and some things, chalk up as some of the most difficult, odd, frustrating, yet heroic times I have ever had. This much I know: Down Syndrome is the gift that just never stops giving.
There’s a special column I write focused entirely on what it is like to live with Down Syndrome. It’s called - appropriately - This is what it’s like to live with Down Syndrome. Here, I don’t hold back. I’ll spout about the pain, the frustration, the black and blue marks, but also the joy and copious surprises that bloom from this life with those extra chromosomes.







felipe on 09 May 2009 at 11:02 pm #
hola susan,
cute boy! and girl!
I also have two, Tania is 10 and Nico is 6.
Nico has Down´s Syndrome, too. and also very cute!
maybe they could play…
i live in santa ana…
i take it you live in puriscal…
have friend there…. you probably know him… steve hawkins
anyway, i guess some student sent me your link…
cheers
f
Sara on 28 May 2010 at 8:02 pm #
Susan, you are not only an AMAZING mother but you are a wonderful writer and have a BEAUTIFUL soul. You are my true inspiration and I feel blessed and honored to be your friend (and neighbor!!). I LOVE YOU! Sara