This is what it’s like to live with Down Syndrome
It’s impossible to be mad at my son. I’ve tried. Believe me, he does enough things to get under my skin and irritate me until I want to scream. For example, this evening he dunked his entire hand into his dinner as if was dipping a paint brush into the can. He then held it up and looked at me with an expression that said: Why does my hand feel so gross?
This little episode wouldn’t have gotten my goat if it hadn’t been for the napkin he threw in his food 30 seconds earlier; and turning around 180 degree in his chair so he wouldn’t eat; and spitting every third bite out so it would dribble on to his clean shirt.
Just yesterday I told the nanny that we can not always react with the same discipline as we do with other kids. It’s just not always cut and dry what thought process is going on. And I don’t think it’s fair to say “no” 400 times a day, which is entirely possible.
Addison is healing from the pneumonia at an incredible rate, but we’ve still got ties to the oxygen machine and stick pretty close to home. School is only a few days week. He is getting bored, and I can see some old tantrum behaviors returning. He’s smacking people in the face when he gets frustrated and throwing things. So, I grabbed the stuffed moose and gave the beast a spoonful (with full moose-slurping side-effects) before Addison would take another bite.

I will never be able to completely understand how Addison connects A to B. He’s got his own way. And for that, I just can’t hold a grudge. And who could ever get mad at a guy who cleans his feet before eating?!














